Caring with love:

transformations, perspectives and possibilities in the care of people diagnosed with dementia

Authors

Keywords:

Caregivers, people with dementia, helplessnes, care

Abstract

Caring for the other diagnosed with dementia is an experience that goes beyond the understanding of what we have noticed. It means bringing to itself the responsibility for the patient's quality of life. This study sought to understand the experience of caregivers of elderly people with dementia from a WhatsApp group called Caring with Love that brings together wives, daughters, daughter-in-law and where their anxieties about the multidimensionality of this experience are expressed. The speech of 23 caregivers was extracted from the group, and submitted to the parameters of the phenomenological method and analyzed under the perspective of Martin Heidegger's Phenomenology, 5 thematic categories originated: a) Daily life becomes a whirlwind of emotions and feelings: transformations from everyday life; b) About the treatment: “tips” from those who have been through the experience!; c) The dimension of the being-caregiver and looking at oneself: helplessness is experienced!; d) Launched in the world of dementia, loneliness is expressed: family and social distance; e) In your pain, my pain; in your work, my work; in your experience, my experience: the experience of solicitude and generosity among caregivers. It is concluded that being a caregiver of people diagnosed with dementia is something that goes beyond the understanding of the act of giving oneself to the other and the creation of the group makes it possible to feel cared for, welcomed in their pain and in their helplessness.

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Author Biographies

Milena Cecília Barroso Fernandes, State University of Amazonas -

Student of the Medicine Course at the University of the State of Amazonas (UEA). E-mail: milena_mcb@hotmail.com Orcid: https://orcid.org/0000-0001-5435-2632

Gabriela Dias Costa, Federal University of Amazonas

Psicologia da Universidade Federal do Amazonas (UFAM). Membro do Grupo de pesquisa de Psicologia Fenomenológico-Existencial (CNPq). Membro do Laboratório de Psicologia Fenomenológico-Existencial (LABFEN/UFAM). E-mail: diasgabriela14@gmail.com Orcid: https://orcid.org/0000-0002-6937-6212

Gabriella Masulo Gomes, Federal University of Amazonas

Student of the Psychology Course at the Federal University of Amazonas (UFAM). Member of the Phenomenological-Existential Psychology Research Group (CNPq). Member of the Phenomenological-Existential Psychology Laboratory (LABFEN/UFAM). Email: masulogabriella@gmail.com Orcid: https://orcid.org/0000-0002-0290-798X

Marqueline Correa Jorge, Federal University of Amazonas

Psychologist graduated from the Psychology Course at the Federal University of Amazonas (UFAM). Email: mssmarque@gmail.com Orcid: https://orcid.org/0000-0002-7932-1100

Felipe Chrystian de Figueiredo Lira, UNINORTE - SER

Undergraduate of the Nursing Course at UNINORTE/SER. E-mail: felipechrystian.lira@gmail.com Orcid: https://orcid.org/0000-0003-1820-5605

Janderson Costa Meira, Baptist Superior School of Amazonas - ESBAM

Human Resources Manager at UNIP – Manaus. Graduating in Psychology at Escola Superior Batista do Amazonas (ESBAM). Member of the Research Group in Phenomenological-Existential Psychology (CNPq). Member of the Phenomenological-Existential Psychology Laboratory (LABFEN/UFAM). Email: jandersonmeiraa@gmail.com Orcid: https://orcid.org/0000-0001-9145-6465

Ewerton Helder Bentes de Castro, Federal University of Amazonas

Doctor in Psychology by FFCLRP/USP. Associate Professor at the Faculty of Psychology/UFAM. Leader of the Phenomenological-Existential Psychology Research Group (CNPq). Coordinator of the Phenomenological-Existential Psychology Laboratory (LABFEN/UFAM). Email: ewertonhelder@gmail.com Orcid: https://orcid.org/0000-0003-2227-5278

Published

2021-12-31